time for my once a year update

I was posting to another blog and realized that I hadn´t updated here in a year.

Sadly not much has changed.

I´m still doing desferal 5x a week for 12 hours at a time. I haven´t been very good about it but I´ve started doing it regularly since June.  My doctor yelled. :(  I also did realize that I´m slowly killing myself and I needed to take better care of myself.

I´m still getting transfused every 2-3 weeks.  I´m being more insistent with my doctors and not letting them take my hemoglobin levels so low that I can´t work.

My diabetes is a mess.  My blood sugars are related to my hemoglobin so nothing is ever stable.  If I could get rid of one of my things...it would be the diabetes.

I´ll try and post more...promise!