Desferal, Smesferal

Again with the every six months posting!

I've been keeping busy. Feeling like crap-o-la, not able to get my blood sugars under control. Every time I get the blood sugar thing licked, my blood count crashes and throws everything off.

Just came out of a three week haze at work. Totally. Stressed. Which did me no good. I fell into bad habits food and sleep wise and, luckily, I learned that I can't do that again. I don't handle extreme stress as well as I did when I was younger. As a result, I've decided to go back to grad school part time next quarter. I feel like a slacker but an MBA isn't worth much in the grave.

DBA wise, I'm doing okay. I'm still on every three week transfusions. Managed to go 4 weeks about a month ago and, lets just say, I didn't feel well that fourth week. My lips seem to be a lovely shade of lavendar and I have a killer headache so I will probably be going in for blood this Friday.

I've been on at-home Desferal since June. I (am supposed to)hook up to the pump for 12 hours a night/5x a week. The pump fits in my pocket, but they must think I'm a giant as they have at least 5 feet of tubing between the needle and the pump. I'm inserting the needle myself (MiniMed Sof-set #42) and it seems to be going well. I hook up at 5:00pm at work and unhook when I wake up at 5:00am. My only complaint is that the desferal seems to raise my body temperature and considering it is in the high 90s here in So Cal...I don't need medication that makes me warmer!

Getting my CBC tomorrow and hopefully they will put in a type & cross while I'm there so I don't have to go back tomorrow afternoon.

desferal transfusion