Well, since my last happy-dandy post where my count had blasted up to a 10.0 - it's been steadily falling in the 8s. Last week I was at an 8.1 and I should have insisted on a transfusion. I guess I'm just way too optimistic that it will jump back up.
I have felt just TERRIBLE the last few days. Typical headache, chest pain, extremity pain. I called my doctor's nurse today and had her send in the paperwork for a type and cross to accompany my CBC+Retic tomorrow. I do that so I don't have to get stuck three days in a row (CBC on weds, T&C on Thurs, Xfusion on Friday). I'm hoping my count is the same or down because I REALLY want a transfusion...I just don't feel good.
On top of this, I'm having lower leg pain from the Prednisone (still on it at 40mg/day). It feels like there are rubber bands around my lower legs - just below my calves. Totally bizarre. Because of that - I have to go to the gym every day to make sure my muscles get exercised and don't disappear completely.
Luckily I like the gym. Especially since my leg exercises have resulted in the beginnings of a J-lo'esque back end.
I start a new job next week. When my new boss offered me the job - I told her about the DBA. I was pretty nervous because, since I came out of remission in 1999, I had only worked for people that knew me and about my condition. I think she was a little surprised but then told me that whatever accomodations I needed, we would work out. Hurrah! It's probably a good thing that I'll be working in a hospital. (IT related). The SUCK thing is that I'm not eligible for any benefits until December because they have a 3-month probation thing. So we are stuck paying 935.49/month for three extra months. This does not make my bank account happy.
The new job is another reason why I want a transfusion....it would be nice to go into a new job not feeling like total crap. It has been 4 months since my last xfusion - hooray for that!
Will try to post more often...until later then!
Tuesday, August 02, 2005
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