I'm still alive...

So sorry that I forgot to post my hemoglobin results after that last post - 4 MONTHS AGO!!!

I'm still alive...tired but here. I'm into my second quarter of Grad School and it is keeping me so busy. It is also beating the crap out of my hemoglobin. I've been on every two week transfusions for the last few months. I'm getting pretty tired of it.

I don't think the Exjade is working. My ferritin was 5500 in March and 7500 in June. Uhmm, isn't it supposed to be going down??? I might have to go on sub-q desferal soon.

Another side effect of Prednisone came up a month ago...Type 2 Diabetes!!! Whooo! No, seriously. I'm checking my blood 3x/day and doing insulin shots 2x/day. Apparently I can't take the pills because of the iron overload (which may also be a contributor to the Diabetes). Needless to say - my body is pretty tired.

Haven't seen my doc in about 6 weeks. Probably will see him before the end of summer...until then I keep on keeping on.

xoxo