Exjade and more transfusions

Things have sort of sucked at the house of Pam. I needed a transfusion on the 10th of March and it looks like I might need one again this coming week. I'm getting the low hemoglobin headache.

I'm also moving and start grad school on Monday night... I'm getting frustrated that the time between xfusions is so short now. So is my doc - but I can't wrap my head around a bone marrow transplant just yet.

I'm thinking about getting a port put in. My last transfusion involved 3 nurses and 5 needle pokes to get the IV set. I've called my doc about it but he didn't mention it...will have to try again. I swear - the nurses must draw straws to see who gets to try me first.

I also started Exjade last Monday. The taste (dissolved in Orange Juice) wasn't terrible but seriously, 30 MINUTES to dissolve this stuff? I have to get up 1/2 hour early just to make my "Exjade Punch". I hope it helps. As much as I'm complaining - it's still better than 12 hours/night Desferal.

Will update on Wednesday with a hemaglobin report!