8.3...

That's what I was as of last Wednesday. I feel like total crap.

It doesn't help that I'm stressed to the max and have had two straight weeks of non-relaxing days. Last weekend we had visitors (for a week : weds-weds) and even though they were great - we were GOING all weekend. Just as they go home- DH's car breaks down and we have to spend this entire past weekend shopping for a new car. (we did sneak in a USC/Stanford game and a quick trip to Disneyland). The car shopping saga continues and I'm hoping that this weekend will be event free.

I'm having pretty intense headaches and major fatigue. Just want to go home. Don't even get me started about stress at work...ugh...

Really Really down this week

Hi folks...

Well my blood count plummetted to an 8.1 this week. I think it had a lot to do with how worn out I got from the USC v Colorado St game. Although I feel bad now...I had a really good time!

This week we have some friends staying with us which includes a trip to disneyland and the reagan library. Going to have to remember to take it very easy.

Cheers...

Too much I can't do...

I'm bummed out today. Matt & I are having friends over next Wednesday for a week (from Colorado) and they sent us the list of things they want to do.

for example:
Beach - can't do it, I can't physically stand being in the sun
Magic Mountain - Can't do it, blood related heart issues
Universal Studios - same problem

We are doing Disneyland/Calif Adventures because I know that I will be able to do some stuff. We are also going to the Reagan Library - can take that slow.

But for most of the things - either I lack the stamina to do them (wouldn't want to make them come back early) or I have heart problems and can't do them anyway.

SUCKS!!

There are so many things I used to be able to do and now can't - I feel like an old lady telling people "Yes, skiing would be nice, but I don't have the stamina for it".

UGH!

I should be grateful - the other day at Disney I saw a little girl in a wheelchair who probably couldn't go on anything...I guess we all have our crosses to bear.

still blows...

9.9

Nurse Gloria just called and I'm up from a 9.2 to a 9.9 - effectively pushing me out of "getting close to transfusion" range!

just had to share...

I am NOT a pincushion!

Don't have my count yet from this morning but I do have the following:
3 needle holes
2 nice rashes in the shape of the tape they used on my bandage

Today was crazy in the phlebotomy lab. All the Monday patients were there for rescheduled appointments PLUS they started a clinical trial so all those patients were there when I went. So I waited 30 minutes just to get a chair.

Apparently there is no blood running through my right arm. Or at least in the two places they tried to stick me.

There was some blood running through my left arm but just enough to drip, drop by drop, into the vial. She could only take a 1/2 vial for my CBC - it was taking that long.

ergh...

Down this week...

My nurse called and I'm down t 9.2...ergh...

Apparently my doctor is on vacation and wanted to make sure I'm doing okay. I feel like I am. I'm back on Weight Watchers and usually the decrease in fat and calories hits me for a few weeks but then I go down a few pounds and my count levels off... So for a few weeks of suck...I can get a few months of being transfusion free.

I also told her that my jury duty medical request was denied... So they are going to write me a note telling what I have and that I need constant medical attention. Hopefully the judge will excuse me.

I started doing Tai Chi this week - it's really helped with my tachycardia - I don't feel my heart beat thumping in my head anymore...can't hurt with stress either!

til next week